In my most recent health update, I included a bullet-pointed list of most, if not all, of my issues and talked a little about ‘comorbidities,’ which is a big word that just means having multiple conditions going on simultaneously (at the same time) that can also be, in some ways, overlapped (in terms of causes and/or symptoms).
In my list, I grouped a few of the items together, but I didn’t really explain the overlaps. That’s what I want to do today, and what I have tried to represent in the diagram above.
Before I get into it: it should go without saying that I am not a doctor and this post is purely based on my own experience, and my own limited understanding of that experience. But, you know, I’m gonna say it anyway: I’m not a doctor. Do not use this post as a guide to diagnose yourself.
Probably the biggest thing to note is how Fibromyalgia is right at the centre of the diagram and, also, at the heart of many of my issues. This is mostly because it’s an umbrella condition that has many different things rolled up in it. (Yes, that’s a mixed metaphor, but I’m sure you know what I mean.)
The main symptoms I have from fibro are chronic pain, chronic fatigue, problems with my joints (which can, in turn, make me more exhausted and my body more painful more quickly), Irritable Bowel Syndrome (IBS), depression, and anxiety (and fibro fog! Can’t forget that!! Though I incidentally did, in my first draft of this post. Plus points for irony!). You can have each of these things on their own, or even a few of them, without having fibro, but when you have all of them, it’s a pretty big indication that there’s something bigger at play.
For me, fibromyalgia is a big deal and the diagnosis made a lot of puzzle pieces click into place. But there are things in my diagram (and on my original list) that are not fibro related. Asthma, for example, has no link to fibro. Except, in my case, it’s triggered by allergies and my allergic response often then triggers my sinusitis and/or IBS symptoms.
Polycystic Ovary Syndrome has no direct link to fibro (at least that I’m aware of), but they both cause me abdominal pain. My IBS also causes me abdominal pain; depression and anxiety often go hand-in-hand even in people without fibro; and I have a sleep disorder that has nothing to do with fibro, but it does double-down on the fatigue I get as part of my fibro. I’m not exactly sure my costochondritis (inflammation of the cartilage that joins the ribs and breastbone) is linked to my more general joint and muscle problems, but it seems fairly reasonable to me that it is.
Moving on from this, in the bottom right of my diagram, you will see a triangle of what I’ve labelled ‘specific learning disabilities.’ These are dyslexia (problems with words*), dyscalculia (problems with numbers*), and dyspraxia (problems with motor skills and judging distances*). All three of these are different and can occur on their own, but they can also often present themselves in the same person, and I am one of those lucky people to have hit the trifecta.
Bottom left of the diagram you will see I’ve listed my hearing problems, which I haven’t linked to anything. That’s because, as far as I understand, it’s a separate issue from all the rest. I don’t know what caused it and I’m still looking for a solution, but medical science is discovering new things all the time so who knows what I might find out in the future regarding it. Maybe it is somehow linked to my patchwork of other conditions and symptoms, or maybe it really is there all on its own.
I mostly wrote this post and made the diagram above for my own benefit, to help myself better understand how I do (and don’t) work, but what I want you to take away from all this is that it can all get pretty complicated.
It’s only in the past year or two that I’ve come to identify myself with the label ‘disabled,’ and it’s a big label with big implications. The diagram above might make it look fairly organised – simple, or logical, even – but the day-to-day reality is that I am really tired and sore pretty much all of the time.
Hopefully my explanation has been clear, but if you have any questions, please feel free to leave them in the comment section below.
*I just want to note that the explanations of dyslexia, dyscalculia, and dyspraxia I have given are super simplistic and in no way represent the full symptoms or definitions of those conditions.